Huntington's Disease Support Group - South Wales - Family support services

What we do

We are a volunteer run support group for people connected to Huntington's Disease to gather together, share information and knowledge and support each other.

Often people involved with HD can feel very isolated and that other people don't really understand what it means to have the disease, be at risk from it or care for someone with it.

We are here to help, you are not on your own.

Who do we support

Anyone connected to Huntington's Disease whether diagnosed, at risk, going through testing, family member, carer or friend.

Is there a charge to use this service?


Can anyone use this service?


Service details for this family support services

Language: English only

  • Can provide specialist support for families of children with disabilities / additional needs No Please contact to discuss your child(s) needs further.
  • Relevant staff have a valid current DBS? Yes

Social media


  • Accessible toilets
  • Accessible parking
  • Access by ramps/level access

 Opening times

Monthly meetings held in Cardiff usually on the last Sunday in the month - join the Facebook group for details or contact us via email. Fully accessible, plenty of parking and disabled parking.

Also general chatter in our private facebook group so you can get to know the others in the group outside of meetings.