Gwasanaeth Gwybodaeth I Deuluoedd - Family Information Service

Down's Heart Group - Family support services

What we do

Provides parent friendly support and information relating to heart problems associated with Down's Syndrome. The Group aims to provide unbiased, up to date facts, thus enabling individuals to make informed choices.

Who do we support

Aims to provide support and information to families, parents and carers who have a member with Downs Syndrome and congenital heart defects. We also support professionals as well as the individual themselves.

Is there a charge to use this service?


Can anyone use this service?

Yes anyone can use - self- referral or via medical professional, social worker, other support group.

Service details for this family support services

Language: English only

  • Can provide specialist support for families of children with disabilities / additional needs Yes Please contact to discuss your child(s) needs further.
  • Relevant staff have a valid current DBS? No


 You can send post here:

Unit 28620
PO Box 6945

Social media


 Opening times

No office location. Our telephone system will try to connect you to someone immediately, but as the helpline is manned by volunteers, you may be directed to the answerphone. Please leave a message, contact details and some idea of the best time to call you. Someone will get back to you as soon as possible.