Society for Mucopolysaccharide Diseases - Family support services

What we do

The MPS Society is the only UK charity supporting individuals and families affected by MPS and related diseases. We offer an individual advocacy support service with skilled and experienced staff who can offer you a wide range of support depending on you or your family’s needs.

The rarity of these conditions means affected individuals and their families often experience difficulties accessing adequate needs-led support and services in their local area. We provide a support network promoting awareness and understanding of the diseases and we work in partnership with you and your family as well as developing professional relationships with local health professionals.

Who do we support

From point of contact we provide emotional support, practical advice, information and guidance and signposting where needed. Our specialist knowledge of the MPS, Fabry and related diseases and our social work experience means we can help in any stage of your journey.

Is there a charge to use this service?


Can anyone use this service?

Anyone can use this resource

Service details for this family support services

Language: English only

  • Can provide specialist support for families of children with disabilities / additional needs Yes Please contact to discuss your child(s) needs further.
  • Relevant staff have a valid current DBS? No


 You can send post here:

MPS House,
Repton Place
White Lion Road

Contact methods

Social media


 Opening times

Monday to Friday 9am–5pm
Outside these hours you can call us on 07712 653258
Monday to Friday 7am–9am and 5pm–10pm
Saturday and Sunday 7am–10pm