CJD Support Network - Family support services

What we do

CJD Support Network offers practical and emotional nationwide support for patients, families and professionals, affected by all strains of Creutzfeldt-Jakob disease (CJD). The CJD Support Network offers:

- practical and emotional support to individuals and families concerned with all forms of CJD.
- practical and emotional support to people who have been told they are at a heightened risk of CJD through blood and surgical instruments.
- emotional support for carers and to link families with similar experiences of all forms of CJD.
- financial support for families in need.
- accurate, unbiased and up to-date information and advice about all forms of CJD.

For more information please contact the national helpline.

Who do we support

Families, patients and professionals affected by Creutzfeldt-Jakob disease.

Is there a charge to use this service?


Can anyone use this service?

Anyone can contact us directly

Service details for this family support services

Language: English only

  • Can provide specialist support for families of children with disabilities / additional needs No Please contact to discuss your child(s) needs further.
  • Relevant staff have a valid current DBS? Yes


 You can send post here:

PO Box 3936

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 Opening times

Our helpline is open on a Tuesday and a Friday from 8am-6pm